This morning, I heard a story  on NPR about a woman who got diagnosed with ALS, a slowly degenerative disease that is eventually fatal. She spent the next year of her life living: travel with her family and doing all those other things you say you’ll do before you go.

She also wrote a book. Since at that time she only had movement in one thumb, she had her husband put her iPhobe in her non moving hand and she typed over 80,000 words with her working thumb into the Notes app on her phone (her iPad keyboard she said was too big to navigate).

I wanted to understand a bit how this felt so I typed this blog entry the same way. It was slow and I got the luxury of correcting my spelling errors, etc. on a full sized keyboard when I posted the blog.

It is amazing what the human spirit can do. Rather than seeing her limits, this woman saw her one working thumb and her still working mind and wrote the book she wanted to. Also made me realize there is more than one way to do something, even if one way takes longer and seems tedious. I thought it was the perfect thing to hear on a Sunday morning when I was feeling a bit sorry for myself feeling under the weather. Made me get up and do something with my day!

If you want to read (or hear) the interview too: http://kgou.org/post/living-life-joy-until-i-say-good-bye

Another great story about the same woman: http://thechronicleherald.ca/artslife/930473-her-toughest-assignment-reporter-chronicles-her-last-days

 

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